Jenna Herbst passed away early Sunday morning after a brief illness from a very aggressive abdominal cancer. She was 50 years old. She is survived by her parents Candace and Mickey Herbst of Westport, as well as her two brothers David and Jon, her sisters in law Joy and Jill, her nephews Ari, Ben, Henry and her niece Sage, all of Fairfield. Jenna had global disabilities due to a genetic condition known as Lennox Gestalt Syndrome which resulted in her having a seizure disorder and intellectual disability.

She attended the Westport Public School system, graduating from Staples High School in 1996. After graduation, she attended the Day Program at Star, Inc. and lived in her family home until the age of 27. At that time, she moved to her own apartment in the affordable housing townhouse complex known as Hidden Brook on the Post Road in Westport for the next 20 years. She was supported by wonderful caregivers who helped her throughout the day. She attended the Star day program during that period as well. In 2023 she joined three women and one man in the group home administered by Star, Inc. known as Ryan House in Norwalk, where an incredibly caring staff supported her needs.

Jenna had a smile that lit up the room. She had a strong personality and was a great communicator, despite being non-verbal. She had a great sense of humor and particularly loved slapstick, often at the expense of her family, friends, and caregivers. Jenna loved music, and growing up was drawn to the piano at home and school. Her demeanor, spirit and resilience, along with the support of her parents and caregivers, enabled her to be a pioneer at a time when people with intellectual disabilities were just just beginning to be more integrated into mainstream society. The main goal for Jenna was to be “on the go”. She always enjoyed being out in the community, and often attended Staples sporting events, the Staples Players shows, community events, and Friday evening dinner at the Little Barn with her companion Laura Blair. Jenna and Laura were a team for over 40 years.

Through the efforts of her family, as well as support from the Department of Developmental Services and Star Inc, she lived a full and happy life. She was included in her community, and Jenna would have wanted it no other way.

A private graveside service will be held today, Monday, March 2nd. Shiva will be observed on Tuesday March 3rd from 4:00 to 8:00 p.m. at Birchwood Country Club, 25 Kings Highway South, Westport CT.

If so inclined, please make a donation in Jenna’s memory to: https://starincct.org/